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Final Preparations for Duchenne Dash 2017

Treatments are coming… We can nearly touch them

We’ve previously mentioned in blog posts that Duchenne kills sufferers in their 20s. However, Ricky Tsang born 20 May 1981 managed to beat the odds. Sadly passing away around the age of 35, that’s 10-15 years longer than expected lifespan. In this video, Ricky pleads with Janet Woodcock, FDA Director, to approve the use of Eteplirsen, a drug that can be used to improve the lives of boys with DMD although sadly it is not a cure. Thankfully Eteplirsen has been approved by the FDA. But the money raised from events like The Duchenne Dash that are able to fund research into treatments and drugs like Eteplirsen, that are yet to be approved.

The Duchenne Dash

Tomorrow hundreds of riders of all skill levels, from novice to professional will push their first pedal from Herne Hill, London at 11 am, embarking on the incredible challenge that is The Duchenne Dash. Cycling into the night stopping in Newhaven for 2 hours before departing overnight on the Ferry towards Dieppe and then towards finishing line, The Eiffel Tower, Paris at 4 pm (BST).

Follow the Dash MAX

We’re going to be giving you updates on the riders journey from London to Monaco, 9th-17th June. To find out more information on those involved check out these profiles:

Alasdair Robertson
Duchenne Dash MAX Founder, Father of Felix

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Chris Mcleod
Director of Mission Performance, Personal Friend of Alasdair and Robyn.

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Rob Lewis
Director of Mission Performance, Personal Friend of Alasdair and Robyn.

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Helen Mcleod
Devoted wife of Chris Mcleod, Personal Friend of Alasdair and Robyn.

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Sarah Crossley
Helen Mcleod’s Partner in Crime

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